I am 37 years old and I had multile PEs i both lungs after a knee op 2 years ago. I presented with sudden rapid heart rate of 180, sweats and riggors and shortness of breath.
I thought I was going to die. I professed my love to my husband and children repeatedly. But fortunately didnt die :-) however my recovery has been very slow and like a rollercoaster. I can be well.for weeks/months living life perfectly normally then suddenly even a minor cold can cause a symptom relapse of breath hunger and breathlessness on exertion. My heart rate is also much higher when i get this.
Sometimes i will even get sweats/riggors come on accompanied with faster heart rats,dry.mouth, need to wee continuously, and shortness of breath. Its extremely frightening and unpleasant and can last anything from 20min to several hours. Colds and exhustion seems to be a trigger. Its like a mini version of the sweats/riggors i had when diagnosed..
Hiwever 2 years on this month and ive had a dreadful.week.of air hunger and riggors eepisodes and ive had enough of it now its the worst ive had symptomatically for about a year im on lifelong rivaroxaban but i supppse a smaller more minor clot is possible..
Anyone else have symptoms or problems this far into recovery?
Yes I have been struggling with recovery. I was in the hospital for 4 days in March 2017 with multiple pulmonary embolisms and a large embolism lodged in the lower chamber of my heart. It has caused congestive heart failure diastolic and shortness of breath, mild chest pain and pressure low stamina and endurance that has continued. I was told in April of 2017 by a cardiologist that the embolisms cause the lungs to die due to lack of oxygen where they lodged and that unfortunately it is irreversible. I have improved greatly but still struggle with shortness of breath when I exert myself to the point where I have to stop to catch my breath. My heart rate is high so have to take medication to control that. I am taking Eliquis.My dad had a DVT in 2008 and my son had a DVT in Jan. of 2017 so they are thinking that there is a family link for embolisms. There has been no cause that can be determined from many tests for developing the embolisms. I have been seeing a pulmonary Dr., he just started me on an inhaler and I finally feel like I did before the embolisms. No shortness of breath, no chest pressure or a dull ache and my energy and stamina is back. I feel great. I am in pulmonary therapy now. I feel that it is helping me. They monitor my vitals closely and they are encouraging. I hope this makes you feel a little better.